RESOURCES

AN INTRODUCTION

When I was first diagnosed with Mild Cognitive Impairment, I was frustrated by the difficulty it could be to find helpful information. That was one of the incentives for me to write Until My Memory Fails Me. There is an extensive Resources section at the back of the book, which is incorporated into this page as well. However, this page also includes many more resources I’ve discovered since the book was written. I plan to continue to update this page as new, relevant information becomes available.

Books about Mild Cognitive Impairment,
Alzheimer’s, and Early Dementia

The Complete Family Guide to Dementia: Everything You Need to Know to Help Your Parent and Yourself

By Thomas F Harrison, et al.

Living with Mild Cognitive Impairment: A Guide to Maximizing Brain Health and Reducing Risk of Dementia

By Nicole D. Anderson, et al.

Coping with MIld Cognitive Impairment (MCI)

By Mary Jordan

My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver

By Marty J Schreiber

Dancing with Elephants: Mindfulness Training for Those Living with Dementia, Chronic Illness or an Aging Brain

By Jarem Sawatsky

Somebody I Used to Know

By Wendy Mitchell

Books by Pema Chodron

Most are available in paperback, on kindle, and in audiobooks.

Comfortable with Uncertainty: 108 Teachings on Cultivating Fearlessness and Compassion

How We Live Is How We Die

The Places That Scare You: A Guide to Fearlessness in Difficult Times

Fail, Fail Again, Fail Better: Wise Advice for Leaning into the Unknown

Living Beautifully with Uncertainty and Change

Start Where You Are: A Guide to Compassionate Living

The Wisdom of No Escape: And the Path of Loving-Kindness

How To Meditate

No Time to Lose: A Timely Guide to the Way of the Bodhisattva

When Things Fall Apart: Heart Advice for Difficult Times

Taking the Leap: Freeing Ourselves of Old Habits and Fears

Other Meditation Books

The Art of Living: Peace and Freedom in the Here and Now

By Thich Natt Hanh

The Power of an Open Question: The Buddha’s Path to Freedom

By Elizabeth Mattis Namgyel

Wherever You Go, There You Are: Mindfulness Meditation in Everyday Life

By Jon Kabat-Zinn PhD.

Books about Working with Emotions and Grief

Healing through the Dark Emotions: The Wisdom of Grief, Fear, and Despair

By Miriam Greenspan

Resilient Grieving: How to Find Your Way Through a Devastating Loss

By Lucy Hone PhD., Karen Reivich PhD.

My Stroke of Insight: A Brain Scientist’s Personal Journey

By Jill Bolte Taylor, PhD.

Organizations and Websites

  • AARP is a nonprofit, nonpartisan organization that empowers people to choose how they live as they age.

    You can learn more by visiting: aarp.org

  • Each county has an Area Agency on Aging to offer local support, resources and education regarding a multitude of issues such as housing, caregiver support, volunteer and other activities. Many have a Dementia Specialist who can assist a person living with cognitive changes and their loved ones access specific programs and resources. If you put in a google search for the Agency on Aging for your state, you will find a website which can direct you to your local agency.

    Or you can go to the national organization that represents the Area Agencies on Aging - USAging: usaging.org/adrcs

  • The mission of the Alzheimer's Association is to lead the way to end Alzheimer's and all other dementia — by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support. Both the national and local chapters offer support and education online. Local chapters often offer support groups and education in person as well.

    You can learn more by visiting: alz.org

  • Azheimer’s Disease Research Center at University of Wisconsin, Madison is designated by the national Institute on Aging (NIH). Through funding from the National Institute on Aging and the National Institutes of Health, the Wisconsin ADRC supports researchers in their pursuit of answers that will lead to improved diagnosis and care for patients while, at the same time, focusing on the program’s long-term goal — finding a way to prevent and effectively treat Alzheimer’s disease. They are also a great source of education about Alzheimer’s disease, dementia and Mild Cognitive Impairment.

    You can learn more by visiting: adrc.wisc.edu

  • This website was developed in collaboration between the Dalai Lama and the psychologist Paul Ekman. Atlas of Emotions is a wonderful interactive site that breaks down the mechanism of emotions and physiological responses.

    You can learn more by visiting: atlasofemotions.org

  • Dr. Lucy Hone and Dr. Denise Quinlan apply their research and training in positive psychology to help people understand and cope with grief.

    You can learn more by visiting: copingwithloss.co

  • Dementia Matters is an educational podcast series about Alzheimer’s disease and other causes of dementia, offering helpful information and current trends in research, diagnosis, and treatments.

    You can learn more by visiting: adrc.wisc.edu/dementia-matters

  • For articles and information on breakthroughs regarding Alzheimer’s Disease, visit: oprah.com/health_wellness/breakthroughs-that-help-with-alzheimers/all

  • Share the Care is a nonprofit organization offering a guidebook and tools to provide support for caregivers using a model to organize supportive care groups.

    You can learn more by visiting: sharethecare.org

  • WAM at Cleveland Clinic is dedicated to closing the gap in knowledge about women’s brain health by funding gender-based Alzheimer’s research and to provide prevention tips and tools to empower people to take control of their own brain health. WAM was founded by Maria Shriver (mariashriver.com).

    You can learn more by visiting: thewomensalzheimersmovement.org

Instructional Videos for Meditation Practices

Body Scan Exercises

“9-Minute Body Scan: Anxiety Skills #31.”
By Therapy in a Nutshell

“Mindfulness Exercise: Body Scan.”
By Policy Research Associates

“The Exercise that Could End Your Suffering.”
Oprah Winfrey Network with Pema Chodron

“Body Scan Exercise, Jon Kabat-Zinn.”
By Be You Fully

“Beautiful Monsters and Handshake Practice with Tsoknyi Rinpoche”
By Pundarika UK

Other Helpful Videos

“The Body Scan: A Beginner’s Mindfulness Meditation.”
By Sharp Healthcare